Almost didn't complete my run this morning. Outside forces have been wearing down on my state of mind and the farther I get out on runs, the more depressed I get. I'm having a difficult time shutting off my brain and just focusing on the running. Still, I did about 3 miles in under an hour and I feel ready for the ten mile run this weekend. Peter wants to extend it to 13 or 14 miles as he has missed some long runs. Not sure if I'm up for that.
I want to make mention of my friend Wes Stevens who has been fund raising for CF in Jacob's and our family's name. Wes and I have known each other ever since I began at Klasky Csupo. He is one of the voice over agents we deal with on a regular basis. We have always gotten along and he has been supportive of us ever since Jacob was diagnosed. As I have mentioned in previous entries, he raised $22K last year running the Honolulu marathon for AIDS Project LA. This year, when he decided to do another fundraiser, he offered to do it for the Cf Foundation and I pounced on his offer.
Well, he has raised his goal to $26,200 dollars, and to entice people, he has decided to run 2 marathons this fall. The first is this weekend in Columbus, Ohio. He has raised close to $8000 and hopes to make it to $10000 by the weekend. I'm including the context of his most recent letter below.
When I'm starting to feel low about the fundraiser this year, I'm going to try and remember that Wes will bring in a lot of money. That may not have happened if I hadn't approached him. And truthfully, part of my job is to also raise awareness. I think that Wes, in reaching out to all of the people he knows, is definitely spreading the awareness.
Here was his first letter:
Well it is that time again…time to lace up my running shoes, get up at the CRACK of dawn each weekend, eat goo, put on nipple guards and start running. And it is time once more for you to generously open your wallet and - while you will not get that “runner’s high (which is a big ol’ lie anyway) - you will get the giver’s high, or at least a little good karma.
Last year you helped me finish my first marathon, 26.2 miles and raise $22,000 for Aids Project Los Angeles. This year I am going twice the distance, TWO full marathons...52.4 miles for the Cystic Fibrosis Foundation.
My first marathon will be in two weeks, the Columbus Marathon on October 17th. Then I will strap on the shoes again on December 5th for the Orange County Marathon. My training is going well, I feel strong and I am ready to double my efforts of last year to help inspire friends, family and colleagues to go deeper and give more to a truly good cause.
I will share more updates and more statistics as we go, but the core truth is: Over 33,000 children in the United States are afflicted with the deadly pediatric disease Cystic Fibrosis. From breathing to digestion, nothing is easy for these children. The disease causes the body to produce abnormally thick mucus, creating life threatening lung infections and host of other problems. Only 50% of individuals with CF even survive to the age of 30.
I am running for Jacob, an adorable little guy who struggles with this disease every day. He is the son of Scott Malchus, a friend and a casting associate at Klasky Csupo. Last year Scott ran the Honolulu Marathon for CF and this year he is doing Orange County. Knowing how much we all helped raise for APLA last year, he asked if I would run for CF in December. When you meet Jacob, how can you say
I am going twice the distance this year; help me make twice the difference. Give what you can. You can either mail me donations made out to
I’ve got a long way to go. I appreciate your support every step of the way. There will be updates to come.
Thank you for your generosity.
And this was his second letter:
Hey Scott. This is what went out last night. It garnered over $3k in donations in under 12 hours…WOW. First marathon is this weekend….Here I go
From: Wes Stevens
Sent: Wednesday, October 13, 2004 6:06 PM
Subject: The first 26.2 is HERE! Help me make it to 10K....
My first marathon weekend is upon me. I'm anxious, a bit insecure and simultaneously inspired and excited. This Sunday at 7 am I will begin the first leg of my TWO full marathons...52.4 miles for the Cystic Fibrosis Foundation.
In the short two weeks since my first email, we have already raised $4,000. THANK YOU.
As I prepare to lace up, tape up, hydrate, and quell my trepidation, I am imploring you to help me make it to $10k by this weekend. Every donation is an inspiration. It fills me with certain pride to know my friends, family and colleagues are truly a part of my run.
I have to say, this journey and the training, the first time I have trained for a marathon alone, has been much more personal. A few times, at 15 mile marks or sometimes less, when I feel like I've had enough, I think of Jacob Malchus. I see his cute mug and think of my friend Scott Malchus' family and the next mile comes a little easier (not painless, but easier).
I asked Scott if he could give me a better window into what his family and Jake go through, he replied (Scott, Jake and Sophie are in the shot below):
"In his short life, Jake's been fortunate to only be hospitalized three times. He continues to be in great health, with most of his medical issues falling into the digestive problems (common with the disease). For a child of almost three years, he does remarkably well with all of the medications he has to take.
With every meal or snack, Jacob must swallow digestive enzymes so that his body will absorb the nutrients from the food he’s eating. And three times a day, he must have breathing treatments using a nebulizer that creates a mist of medicines that go directly to his lungs. In addition, there are the medicines to help settle the acid in his stomach, and the various vitamins he must take. Of course, Jacob knows no other way of life. This disease will be with him the rest of his life."
The only way for Jacob's life to change, to experience a "normal" childhood is with a cure. That's what I'm running for and you are generously giving for…
I am going twice the distance this year; help me make twice the difference. Give what you can. You can either mail me donations made out to:
I’ve got a long way to go. I appreciate all of your support in word, thought and donation. Let's find a cure, I can run, you can give. Wish me luck this Sunday.
Pretty incredible. I hope everyone readn this will keep Wes in their thoughts an prayers this weekend.